…After 5 years of running a restaurant and a catering business, a location move, and the ultimate decision to sell my café and catering business, I became an exclusive stay at home mom, over the past year, to my now, 2.5 year old twins. I made this decision in order to be the full-time support system and caregiver to one of my twins, who due to a pregnancy complication, causing a traumatic brain injury (TBI), was diagnosed with Cerebral Palsy. For anyone who knows anything about Cerebral Palsy or has a beloved family member with this condition, you know all too well the tremendous support and care they can require on a daily basis, as is our case, full stop.
Although Cerebral Palsy differs from person to person, my daughter’s case is one of the most extreme diagnoses,’ causing high tone, spasms and major mobility issues. Over the past year we have worked very hard together, through long days, to develop therapeutic regimens that would work best for her needs and progress. This included daily physio, exercise, massage and stretching techniques, along with occupational therapy, speech therapy and many many Doctor and specialist appointments, both in and out of town. All of this was, and continues to be, necessary in order for her to utilize the various mobility devices available to her; ones that she was originally not able to use, due to high tone issues.
My time has otherwise been spent researching, often into the early hours of the morning, different techniques that could help in her mobilization, as well as bring a sense of quality and morale to her life. Along with study of the physical processes and mechanics that we had to learn for her movements I have been, and continue, studying the beautiful world of Neuroplasticity and all its wonders. It has been a fascinating journey to say the least. Anyone with children, and especially those with complex needs know that you would literally go to the ends of the earth for them. And so, I continue to feel honoured to take this journey along-side my two daughters; two souls that have taught me more about life in two years, with little words, than all of my previous 30-plus.
One of our biggest struggles, besides the mobility portion has been the process of her learning to eat. This meaning, we had to create a system that was able to adequately provide her nourishment, entirely on healthy and whole foods, instead of processed formulas or tube feeding. I know that in some cases this is unavoidable, but I can only speak to my own experience. The thought process being that if we could work hard together, with the desire, and learn how to eat food by mouth, we would give it every shot we could. She deserved my full efforts, and I’m so astoundingly proud of her, every single day! After over a year of dedicated and diligent work she is now able to successfully eat from a spoon, a feat she was never expected to reach, having been expected to require a G-tube to feed.
Although she still has a long way to go, I am so happy for her and that she has come so far in such a short time. We will continue to work hard every day learning from one another, while sharing our story with the world and those it might help or inspire.
#cerebralpalsy #cpawareness #ttts #twintotwintransfusionsyndrome #neuroplasticity #health #wellness #healthylifestyle #nutrition
Tanya is a classically trained, Red Seal Chef, and former restauranteur and caterer, with additional studies in Holistic Nutrition and business. Having food as her foundation she continues to build on her interests and knowledge base in the study of the body, mind and brain connection. She now spends her time as a Mom of twins, researcher and writer, while continuing to participate digitally in the culinary world with her company, Artisan Food Co.